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Center for Biomedical Ethics & Society Recent Publications

 

 Bruce Jennings: “Dying: Closing the Gap between What We Know & What We Do,” Bill of Health, Petrie Flom Center, Harvard Law School, February 19, 2015. (Co-authors Susan M. Wolf and Nancy Berlinger). Available at http://blogs.law.harvard.edu/billofhealth/2015/02/19/dying-closing-the-gap-between-what-we-know-what-we-do/

 Bruce Jennings: “Ecological Political Economy and Liberty,” in P. G. Brown and P. Timmerman, eds. Ecological Economics for the Anthropocene: An Emerging Paradigm. New York: Columbia University Press, 2015, 272-317.

 Bruce Jennings:  “Solidarity in the Moral Imagination of Bioethics,” Hastings Center Report, 45:5 (September-October), 2015, 31-38. (Co-author: Angus Dawson).

 Bruce Jennings:  “Right Relation and Right Recognition in Public Health Ethics: Thinking Through the Republic of Health,” Public Health Ethics, advance access published November 26, 2015. doi:10.1093/phe/phv032

 Bruce Jennings:  “Integrating Ethics in Public Health Education: the process of developing case studies,” Public Health Reviews, 36, No. 4 2015. DOI 10.1186/s40985-015-0002-3. (Co-authors Ted Tulchinsky and Sarah Viehbeck).

Churchill, Larry R., Joshua E. Perry.  INTRODUCTION.  The Journal of Law, Medicine & Ethics , 2015; 42:408-411. http://dx.doi.org/10.1111/jlme.12163

Wolf, Susan M., Berlinger, Nancy, Jennings, Bruce.  Forty Years of Work on End-of-Life Care — From Patients' Rights to Systemic Reform. New England Journal of Medicine, 2015; 372:678-682.  doi:10.1056/NEJMms1410321

Clayton E. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness.JAMA. Published online February 10, 2015. doi:10.1001/jama.2015.1346.

Michelle Bayefsky and Bruce Jennings, Regulating Preimplantation Genetic Diagnosis in the United States: The Limits of Unlimited Selection. New York: Palgrave Macmillan, 2015.

Bruce Jennings, “Alzheimer’s Disease: Quality of Life and the Goals of Care,” in John Arras, Rebecca Kukla, and Elizabeth Fenton, eds. The Routledge Companion to Bioethics. New York: Routledge Press, 2015, 437-448.

Susan M. Wolf, Nancy Berlinger, and Bruce Jennings, “Forty Years of Work on End of Life Care—From Patients’ Rights to Systemic Reform,” New England Journal of Medicine (372;7 (Feb. 12, 2015),678-682.

Bruce Jennings, “Relational Liberty Revisited: Membership, Solidarity, and a Public Health Ethics of Place,” Public Health Ethics, 8 (1) 2015. doi: 10.1093/phe/phu045. [epub ahead of print]

Bruce Jennings, John Arras, Drue Barrett, and Barbara Ellis, eds. Emergency Ethics: Public Health Preparedness and Response. New York: Oxford University Press, 2015, in press.

Joseph B. Fanning, Nanibaa’ A. Garrison & Larry R. Churchill. (2015) Beyond the Recommendation:
Discerning Achievable Goals in Clinical Ethics Consultation, The American Journal of Bioethics, 15:1, 42-44, DOI:
10.1080/15265161.2014.974778

Heitman, Elizabeth. Cross-cultural considerations in U.S. research ethics education.  Journal of Microbiology and Biology Education 2014, 15(12): 130-134. DOI: http://dx.doi.org/10.1128/jmbe.v15i2.860

Timothy W. Kirk and Bruce Jennings, eds. Hospice Ethics: Policy and Practice in Palliative Care. New York: Oxford University Press, 2014.

Bruce Jennings, “Design for Dying: New Directions in Hospice and End of Life Care,” in Timothy W. Kirk and Bruce Jennings, eds. Hospice Ethics: Emerging Issues in Policy and Practice. New York: Oxford University Press, 2014, 285-308.

Bruce Jennings, “Public Health as Civic Practice,” in Akira Akabayashi, ed. The Future of Bioethics: International Dialogues. New York: Oxford University Press, 2014, 550-553.

Bruce Jennings, “Rights of Passage: Ethical Aspects of Adolescent End of Life Care,” in Kenneth Doka and Amy S. Tucci, eds. Coping with Loss in Adolescence. Washington, DC: Hospice Foundation of America, 2014, 29-45.

Bruce Jennings, “Public Health X: Emergency Preparedness and Response,” in B. Jennings, ed. Bioethics 4th Edition. 6 vols. New York: Macmillan Reference USA, 2014, Vol. 5, 2649-2656.

Bruce Jennings, “Liberty,” in B. Jennings, ed. Bioethics 4th Edition. 6 vols. New York: Macmillan Reference USA, 2014, Vol. 4, 1802-1809.

Bruce Jennings, Editor in Chief, Bioethics, 4th Edition, 6 vols. Farmington Hills, MI: Macmillan Reference USA, 2014.

Schenck, David. Interview. Aging Matters: End of Life. Nashville Public Television. WNPT, Nashville. 2013. Television.

Churchill, Larry R, Joseph B. Fanning, and David Schenck. What Patients Teach: The Everyday Ethics of Health Care. , 2013. Print.

National Research Council.  Confronting Commercial Sexual Exploitation and Sex Trafficking of Minors in the United States  . Washington, DC: The National Academies Press, 2013.

Churchill, L. R. “Beneficence,” Encyclopedia of Bioethics, 4th edition, Bruce Jennings, editor                      (2013)

 Churchill, L. R. “American Healthcare: Ethical Dimensions of Financing Healthcare Reform,” (Grand Rapids, MI: DeVos Medical Ethics Colloquy, 2013), pp.8-22.

 Ellen Wright Clayton, Susanne Haga, Patricia Kuszler, Emily Bane, Krysta Shutske, Wylie Burke, Managing Incidental Genomic Findings: Legal Obligations of Clinicians, Genetics in Medicine (in press, 2013)

 Ellen Wright Clayton and Susan E. Kelly, Let’s Ask Better Questions, Genetics in Medicine May 23. doi: 10.1038/gim.2013.68.

 Lainie F. Ross, Mark A. Rothstein, Ellen Wright Clayton, Premature Guidance About Whole Genome Sequencing,Personalized Medicine (in press, 2013)

Nancy Berlinger, Susan M. Wolf, and Bruce Jennings, The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life, Revised and Expanded Second Edition. New York: Oxford University Press, 2013.

Bruce Jennings, “Biotechnology as Cultural Meaning: Reflections on the Moral Reception of Synthetic Biology,” in Gregory Kaebnick and Thomas H. Murray, eds. Synthetic Biology and Morality: Artificial Life and the Bounds of Nature, Cambridge, MA: MIT Press, 2013, 149-176.

Bruce Jennings, “Solidarity, Mortality: The Tolling Bell of Civic Palliative Care,” in Christina Staudt, ed. Our Changing Journey to the End: Reshaping Death, Dying, and Grief in America, 2 vol. New York: Praeger, 2013, II:271-288.

Ellen Wright Clayton, Sharing Individual Research Results with Biospecimen Contributors:  Counterpoint, Cancer Epidemiology, Biomarkers & Prevention 2012; 21(2):260-1

 Kyle B. Brothers, Ellen Wright Clayton, Parental Perspectives on a Pediatric Human Non-Subjects Biobank, AJOB Primary Research 2012;3(3):21-29

 Amy L. McGuire, Ellen Wright Clayton, The Legal Risks of Returning Results of Genomics Research, Genetics in Medicine 2012; 14(4):473-7

 Stephanie M. Fullerton, Wendy A. Wolf, Kyle B. Brothers, Ellen Wright Clayton, Dana C. Crawford, Joshua C. Denny, Philip Greenland, Barbara A. Koenig, Kathleen A. Leppig, Noralane M. Lindor, Catherine A. McCarty, Amy L. McGuire, Eugenia R. McPeek Hinz, Daniel B. Mirel, Erin M. Ramos, Marylyn D. Ritchie, Maureen E. Smith, Carol J. Waudby, Wylie Burke, Gail P. Jarvik, Return of Individual Research Results from Genome-wide Association Studies: Experience of the Electronic Medical Records & Genomics (eMERGE) Network, Genetics in Medicine 2012; 14(4): 424-31

 Pulley JM, Denny JC, Peterson JF, Bernard GR, Vnencak-Jones CL, Ramirez AH, Delaney JT, Bowton E, Brothers K, Johnson K, Crawford DC, Schildcrout J, Masys DR, Dilks HH, Wilke RA, Clayton EW, Shultz E, Laposata M, McPherson J, Jirjis JN, Roden DM, Operational Implementation of Prospective Genotyping for Personalized Medicine: The Design of the Vanderbilt PREDICT Project.  Clinical Pharmacology and Therapeutics. 2012 92(1):424-31

 Marianna J. Bledsoe, Ellen Wright Clayton, Amy L. McGuire, William E. Grizzle, P. Pearl O’Rourke, Nikolajs Zeps, Return of Research Results from Genomic Biobanks:  Cost Matters, Genetics in Medicine 2013 Feb;15(2):159-60

 Matthew J. Westbrook, M. Frances Wright, Sara L. Van Driest, Tracy L. McGregor, Joshua C. Denny, Rebecca L. Zuvich, Ellen Wright Clayton, Kyle B. Brothers, Mapping the Incidentalome: Quantifying Incidental Findings Generated Through Clinical Pharmacogenomics Testing, Genetics in Medicine Nov 29. doi: 10.1038/gim.2012.147. [Epub ahead of print]

 Ellen Wright Clayton, Susanne Haga, Patricia Kuszler, Emily Bane, Krysta Shutske, Wylie Burke, Managing Incidental Genomic Findings: Legal Obligations of Clinicians, Genetics in Medicine [Epub ahead of print, 2013]

 Marianna J. Bledsoe, Ellen Wright Clayton, Amy L. McGuire, William E. Grizzle, P. Pearl O’Rourke, Nikolajs Zeps, Return of Research Results from Genomic Biobanks:  A Call for Data, Genetics in Medicine 2013 Feb;15(2):159-60

 Altman RB, Clayton EW, Kohane IS, Malin BA, Roden DM, Data re-identification: societal safeguards. Science. 2013 Mar 1;339(6123):1032-3